Tuesday, September 20, 2011

Yesterday and today were supposed to be rest days but I didnt do much resting. Yesterday they adjusted my blood pressure medicines and today it finally seemed to be a little better. My breathing is still very fast but tomorrow mommy is going to ask the doctor for some extra medicine to make me pee. Tomorrow is the big day finally. I'm a little nervous but at least tomorrow is day 1 and I can start counting to day 100. Hopefully then I can go back to the IWK. My doctor told me, mommy and daddy today that tomorrow is the day they cure me. I really, really hope he is right.

Sunday, September 18, 2011

Yayyyy!! Today is my last day of chemo!! I cant wait to be done. I'm still pretty cranky, the nurses say its because of the Ativan but that will be over tomorrow. I'm doing okay with the eating but I seem to be having a lot of gas. I spent a lot more time with just daddy this morning because mommy was really tired so she didnt get to the hospital until after lunch. I think I'm giving mommy and daddy a hard time with my crankiness, but only a few more months and then hopefully all of this will be behind us.

Saturday, September 17, 2011

I've been pretty cranky the last few days. Nurses say its from the Ativan but I dont know, I think its from ALL of this medicine that they have been pumping into me! I spent most of the last few days screaming. I'm not giving mommy and daddy a break at all! Of course they wouldnt have volunteers available to give mommy and daddy some alone time. My blood pressure is still way up, they keep increasing my medicine to help with that. All of these fluids dont help much with keeping it down. If anything, they are making me puffy and making it harder for me to breath and that sucks! Daddy was on the phone with someone yesterday talking about me and telling him our story so far. I guess its for some kind of paper so that everyone can read about me and my sickness. I think I heard daddy say its called the Halifax Herald and it should be out mid next week. Why someone would write about me, I dont know. I guess I'm just that special.

Wednesday, September 14, 2011

I am not feeling like myself. The nurse gave me the medicine that made me sleepy and cranky. It was to make sure I didnt seizure from the side effects of the chemo I guess. I did manage to eat today and everyone is still very impressed by that! They only had to give me one chemo today and they didnt have to take as much red stuff as they did yesterday. But, my red stuff in my body is very low so I had to get some and mommy and daddy were told that wont be the last time that happens. I might have to get red stuff put in me 10-15 times during my stay here! I have been having a lot of problems with my pressure and with being puffy. The nurse gave me some medication for both and it seems to work for a little while. Daddy said the chemo seems to give me more of a personality. I have been very demanding lately and they say there doesnt seem to be much they can do to please me. Oh well, Im just a baby, I can get away with acting like that!

Tuesday, September 13, 2011

My chemo started today. My favorite nurse was here today and when she came in my room she noticed that I was all puffy. It was from all that fluid that I got the night before! I knew that was going to happen! I got two different kinds of chemo today and after the nurse gave it to me she took a bunch of red stuff. The nurse said I would probably need to get a bunch of red stuff because she was taking so much of it from me to get tested. Day one of chemo wasnt so bad, I actually felt like eating today and everyone seemed very impressed by that. It wasnt until the night time that the problems started. They gave me some medication to help me pee out all the extra fluid that was making me so puffy. My pressure went up really high and the nurse had to call the doctor to get some more medicine to give me. Eventually it went down and I felt a little better. My cousin Gabby came to the hospital today and I got to see her through the window. She is sleeping here tonight in a room just like mine! Gabby is very special, she has magic in her bones! Tomorrow the doctors are going to take some of Gabby's magic and save it for me because I have no magic in my bones. My cousin is so brave to give me her magic like that! I love her very much!

Monday, September 12, 2011

Today was supposed to be a rest day. I didnt do much eating but mommy and daddy tried to force me to eat. I just dont feel like eating. The nurse came and took more red stuff from my big line, atleast it doesnt hurt now like it used to, but they take lots of blood. My chemo starts tomorrow and they gave me a bunch of medication before it starts. They hooked me up to a big pump and put a bunch of stuff into my big line. They told mommy and daddy it was fluid to flush out my kidneys so the chemo wouldnt be so hard on them. I just hope I dont have trouble breathing like I did the last time when they gave me all the fluids in the IWK.

Saturday September 10th 2011

I am so sleepy today because I was throwing up all night! I didnt really feel like eating all day today but at supper time I did pretty good! The nurse gave me some medicine and then I threw up all my milk.
I still didnt lose the fluid weight from yesterday's surgery. The doctor told mommy and daddy that I should lose that extra weight soon. Because my kidneys arent working 100%, it takes a little longer for me to pee everything out. I didnt give any smiles today because I just wasnt feeling like myself. The nurses told me today would be a quiet day and they wouldnt have to poke me and take any red stuff. They said I could spend the day relaxing, but instead I spent the day being cranky and sleepy. I am really sore under my arm where they put in my big IV line. It hurts when mommy and daddy pick me up under the arms and I cry! My big IV started bleeding today but they tell me that's normal we just have to keep an eye on it. Maybe tomorrow I will feel a bit better!