Monday December 19th 2011

Well not too much is happening here at the IWK. Most of the day I just sit around with mommy and play. Sometimes I have friends that come in to play with me but they make me do all kinds of exercises. I'd rather watch TV and lay on my back then do pushups on my belly. I get lots of red stuff taken from me still, usually twice a week. We are waiting to get a test back that tells us if my lymphocytes are working and hopefully tomorrow we will find out. My cell counts were doing really well until I got sick with my poop and now they all have dropped. Mommy and daddy are very worried because they are afraid I will have to get another transplant but I know that if everyone keeps praying for me and sending me positive energy that things will turn around. I'm having some problems with eating again too. I just don't like to eat or drink anything. The doctors said once I stop my medicine for my yucky poop that I should start feeling better but I dunno we will see. People are telling me that Christmas is coming soon and that a man wearing red will come to see me and bring me presents. I think he came early though because I saw a man through my window last week waving at me and he brought me a storybook. I really don't need any gifts though, I'd rather just have some lymphocytes so I can go home with mommy and daddy. They tell me it's really nice there and I will like it alot. Anythings got to be better then this place.

Thursday, December 7, 2011

Mommy has been hibernating for the winter and hasn't had time to help me write in this blog so daddy is helping me! He says that I should tell everyone that I have been doing pretty good for someone who was very sick just a few months ago. I guess daddy spent his birthday driving a truck from one hospital to another. He and mommy rented a truck because there were no planes for them to use and they had a lot of things to bring back to Halifax with them. I took the same plane back to Halifax as I did going to Montreal but I left the day after mommy and daddy because they drove. I spent the night at the hospital with just the nurses so needless to say I really missed mommy and daddy but I still had fun. I reallysdsgvfvdhdfhasuygu ,l;dlkdjhA dad!! Stop that! Daddy just mashed all the keys when I was trying to type! He's so silly! Mommy and daddy have a new apartment now. It's close to the hospital so mommy and daddy go back and forth from there to here. One night mommy stays with me and the next night daddy does. Dad must be working again now because some mornings he leaves really early and hes wearing fancy clothes with a big hat! I know how big the hat is because he put it on my head one day and it covered my face! Mommy says he looks dreamy in his uniform. I dont know what the means but when she says it she drools just like I do sometimes! When daddy goes to work I spend a lot of time with mommy because its just the two of us for most of the day. I get really excited to see my dad when he comes home though, I really love my dad! Daddy says that people tell him we lohbjfbdv v kdsol,;']LNSa[ dad!! As I was saying people say we look the same so maybe I will be dreamy too someday? Daddy says as long as I dont get a hairline like poppy and most of daddy's friends then I should be a good looking boy! I hope so! Anyway, the only thing bad to tell everyone is that I have a problem with my poop. I guess it's called CDif. Mommy and daddy are worried but I feel pretty good. Daddy was supposed to go away to see my godfather Josh this weekend but he stayed here because of my poop! Thats a pretty good daddy to stick around for stinky poop! I have a new line thingy in my chest now. The last one came out a bit so they took it out all the way and put in a different one called a port-a-cath. This one should be a good one and stay on for a while. I was sleeping the whole time that they put it in. When I woke up mommy and daddy weren't around but then they came to see me a few minutes later. Mommy was crying before I went to sleep and she cried when I woke up. She cries more than me! Okay well that's all for now! Mommy will help me write again next time! Daddy is asking for everyone to let him know if they read this new post so that he knows people are aware that it's updated!

Thursday November 3rd 2011

Womp womp...no test results for me today. The doctor came to see us and said the laboratory didn`t test my blood. They forgot it I guess, imagine forgot it! I thought mommy was going to scream because we have been waiting all week for this very important news. Now we have to wait until Monday to hear anything. Monday? Are you sure Monday? Not Tuesday but Monday? Grrrrr...more waiting...story of my life. To top off the day I had to get poked with one of those big sharp thing again. I thought all that was over but I needed some medicine to help with my immune system. The doctors said it should help to prevent a cold or flu. All I know is that it hurt really bad but mommy and daddy snuggled me after it was all done. I love my mommy and daddy.

Wednesday November 2nd 2011

Yesterday I was supossed to have a big surprise to tell everyone but it didn`t work out for us. The big surprise is now put on hold until a later date. Today is the day we waited a week for to hear about more test results. They took some red stuff on Friday to tell if my precentage of donor cells has increased but of course more waiting. The doctor said the results didn`t come back yet so we will have to wait until the morning. I think mommy may just go crazy with all this waiting but one more night it is. Earlier today I had a little accident with my tummy tube. I was playing with some lady and I got really excited and grabbed my face and I "accidently" grabbed my tube instead. Woops! The nurse had to put it back in but atleast I got a few hours break from it. I wish They would just leave it out all together but the doctor said I have to eat more first. Yuck! I hate food.

Monday October 31st 2011

Happy Halloween!!! Mommy and daddy bought all kinds of treats for the kids at the hospital. They gave bags to all the sick kids just like me who have had transplants. They could only have certain kinds of treats and everything had to be cleaned before they got them. I even got some treats too! Well mommy and daddy did because I can`t eat any of that stuff yet. I got dressed up as a tastey hamburger and people tried to eat me all day long. The nurses and doctors kept saying "mangé mangé" to me, I guess they thought I looked delicious.These people came from the police station and gave me a calender and some pictures of Disney World. They said some day I`ll be able to go there and mommy says it`s the most magical place on earth. When I get bigger I get to make a wish for anything in the world. Maybe that`s what I`ll wish for, a family trip to Disney World. One of my transplant friends wished for grapes from sobey`s. Too bad he can`t have them right now but maybe some day he`ll get his wish.

Friday October 28th 2011

We waited all day for the doctor to come talk to me, mommy, and daddy. He said they were`nt really impressed with my cell counts but are hoping with time they will increase. Because they are so low when I go back to the IWK I will have to stay in a special room for a while until my counts are safe. No surprise there, we are all used to being in isolation now anyway and its so much cleaner than having people around me all the time. I know my family won`t like it but I`m the most important person right now and mom says everyone will have to listen to her rules whether they like it or not. Mommy is very protective of me so I know she will keep me safe. They took some more red stuff from me today to test my counts once again. It takes so long to get the results back but we should have them by Wednesday. Doctors say maybe, just maybe, I`ll be able to go back to Halifax within the next week or two. They say theres nothing else right now they can do for me so it`s just a waiting game to see if this transplant is going to pull through or not. I sure hope it does.

Wednesday October 26th 2011

After a week of waiting the news about my graft finally came today. I thought mom was going to have a stroke waiting for the results. She couldn`t sit still all week long but today was especially bad. First this morning some lab work came back which didn`t show much promise but later on that evening the doctor came to tell mom and dad that the precentage of gabby`s cells in me increased from 22-29%. It isn`t much but it`s a start. The doctors were just glad that the numbers didn`t go down and so was I. Hopefully after some time the numbers will grow and grow and I`ll finally be able to go back to the IWK. I have to meet with another doctor on Frday so he can tell us a timeline...whatever that is supposed to mean, I just hope it`s good news.