Saturday 8 September 2012

Saturday, September 8, 2012

A lot can happen in a month. Mommy, daddy and I moved in with nanny and poppy for a little bit until our new apartment is ready. It sure was a busy time trying to get out of the old apartment. Uncle Aaron came over one day to help daddy take all the heavy stuff and put it into a truck, I helped a little too by throwing my toys out of the way of their feet! Mommy was really busy with packing everything up with her friends Crystal and Nicole. Daddy's friends Jaccob and Nathan helped him and uncle Aaron put all the stuff into a storage place! After all of that hard work it still wasn't done yet. Daddy had another friend, Jason, come over to help him move some things and then nanny and poppy came over too. Finally everything was done and then I spent the night with nanny and poppy because mommy and daddy had to go to a wedding in Cape Breton. Nanny and poppy's place sure does look different with all that carpet gone! They were busy laying hardwood floors upstairs so I could have a carpet free environment to live in for a bit. My visits to the doctor's don't seem to happen as often. Mommy and daddy keep saying the word "vaccines" when they talk about our next appointment so I think something scary is going to happen but I'm not worried! I think my immune system really works great now! Oh, guess what? I know how to use my legs to get me around now! It took a lot of courage for me to let go of the furniture and move but I did it! It's a lot funner to get around this way. I don't know if its any quicker than crawling but it makes me look like a bigger boy! I sure do miss all my toys though, pots, pans and tupperware can only keep a person busy for so long! I really can't wait for my baby sister to get here, at least then I will always have someone to play with! Well that's all for now. We will talk again soon!

Monday 30 July 2012

Monday, July 30, 201

Hi everyone! Again, it's been a long time since I've written to you all. Things are still moving right along for me. I now only have to go to the hospital every 3 weeks. My aunts and uncles are allowed to interact with me now! The doctor even said that my cousins can hold me as long as they wear a mask, I've been waiting to play with my cousins for a long time! I think I can start going to more public places now too as long as mommy and daddy are careful. For now I think we will just take baby steps into that transition but it's good to have the doctor's permission! Mommy is always on the computer talking about places to live so I think we will be moving soon. As long as I get my own bedroom and all my toys come with us then it doesn't matter to me! Oh, since I last wrote, mommy has taken me to nana and papa's house in Cape Breton. It was great to go visit them at their house for a change! Next time I go there I can play with my cousins! It sure has been a long road for me but I am enjoying every day that I'm not in that hospital! Thank you everyone for helping me and for helping my mommy and daddy! We love you all very much! Maybe I will have some even bigger news next time I write! Let's hope!

Tuesday 26 June 2012

Tuesday, June 26, 2012

Hey everyone! Very long time no blog. Sorry about the big break but I've been so busy these days. I can go outside with mom and dad a lot now. My grandparents visit me a lot and they are allowed to hold me and play with me without all the masks, gowns, and gloves! My uncles and aunts are allowed to see me now too and hopefully within a year I can see all my cousins! Keep your fingers crossed for me. Since my last post I had my first birthday party! It was awesome! My grandparents all came over tohave some supper and cake with me. I wasn't too sure what to think about the cake stuff at first but once I got my hands into it I realised it wasn't so bad. It was just really nice to be home celebrating my first birthday with my family. There are a lot of little boys and girls who don't get to do that so I am very thankful for that. I put a new picture on the home page for everyone. Its not a really new picture but atleast its not a picture of me when I was a really sick boy. Things at home are very good! I am walking around the furniture now and chewing on it too! I only have 3 teeth to chew with but I can sure do some damage with them! I like to open up all the doors in the house, especially the little ones in the kitchen. Those doors are easy to open and they have cool things inside them. Dad keeps saying he is going to lock them up whatever that means. Mom and dad say that I dont say a lot of things yet but I dont know what they're talking about because I talk all day long! I guess they dont understand me. I still go to the hospital every second week to make sure my blood looks good. So far eveything must be going pretty good because the doctors keep lifting restrictions. A couple of weeks ago I spent the weekend with my grandparents because mom and dad won a trip to Toronto thanks to the Cambridge Suites. I really missed them but it was nice to spend so much time with my nannies and poppies. There were some men with video cameras taping mom, dad and I. They said it will be on the web site for cambridge suites eventually. When it's on there I will try to remember to tell everyone! Anyway I guess thats all I have to say for now. I'm growing up and getting busier but as always I will try my best to put something on here for everyone when I can!

Tuesday 20 March 2012

Tuesday, March 20th, 2012

Well, I know it's been a while since I kept everyone updated but mommy promised me this time that she will help me write. It's been a very exhausting life so far but finally I get to start taking it a bit easier. My counts have been holding thier own and to date my lymphocyte count is 1100. Dr Issekutz said he wants them to be atleast 1500 so I am slowly getting there. We are going to be doing another test next month to see how many of Gabby's cells I have. Right now it's only 64% but the Dr's said the other 36% of my own cells are still working a little bit on thier own because the good cells are cleaning up my bad cells so they aren't as toxic to me as they used to be. I'm really on the move now too! I like to climb all over mommy and daddy but I haven't mastered it on the floor yet. The ladies who see me at the hospital and make me exercise said I'm doing well. I'm a little behind still but they aren't worried. Other ladies see me about my eating and drinking too but I'm not so good with that. Mommy and daddy have to put a tube down my nose into my belly to give me some milk. I hate drinking and eating and I hate the tube too. Sometimes I pull it out because it gets in the way hehe. Mom and dad don't like that though because then they have to put it back in which isn't fun for eveyone. Also, I only have to go to the hospital to see the Dr. every two weeks now which means they don't take as much red stuff from me. But the best new development of all is that I can go OUTSIDE FOR WALKS (in my bubble of course)! Me and mommy go everyday and I get to see all kinds of new things. There are lots of people around and I can see thier faces, it's so exciting. Someday I'll be able to go out without my bubble and maybe even have a party with all my family and friends. YaY!!!!!

Tuesday 24 January 2012

Tuesday, January 24, 2012

Man. What a month! Mommy and Daddy took me to their home two days before Christmas. Well, I guess it's my home now too hehehe. I was used to the hospitals being my home so I was a little scared about going to a new place on the outside! I have to say though, it's a really nice place! Mommy and daddy did a pretty good job of picking out a new and clean home for me to live in. It was all decorated with Christmas stuff and it smelled really good in there. There was a way bigger tree than the one I had in my room at the IWK! It was awesome!! One morning I woke up and I got to tear some colourful paper off some boxes. That was so much fun to do! I couldn't care for the box itself, just the paper!! It was really nice to see my nanny and poppy without masks and gowns on for a change. They cant hold me or kiss me but atleast they can talk to me and make me smile and laugh. They brought over a really big box for mommy and daddy! I dont know what it was but I heard poppy say to daddy "good luck setting it up." Daddy just recently set it up while I was sleeping in the afternoon. He was saying some bad words but I think it was at all the men with helmets on the tv. He likes to yell at them every Sunday! Especially the two men named Pat. He's always saying "I hate those Pats!" But he says some words I am not allowed to say. Anyway, when he was done setting up the big box it looked like a spaceship! It wasnt aspaceship though. Does a BBQ make any sense to anyone? Those three letters might be code for whatever it was, I will just call it a spaceship!! I have been going back to the hospital every week for checkups. The doctors and nurses say I look really good and am doing really well! We have been travelling in uncle Andrew's car because mommy and daddy gave their Jeep machine to another man. I heard daddy say that he bought a new vehicle though so I will get to ride in it on Thursday for my checkup! Yayyyyyy! Okay so it's been a busy month for mommy, daddy and me but we are all doing well! mommy and daddy promise that they are going to try and keep up with helping me write this story. I'm just a little boy, I can't do it alone and there are people who love me and want to know how I'm doing! Thanks for reading everyone and keep checking each week!