Monday December 19th 2011

Well not too much is happening here at the IWK. Most of the day I just sit around with mommy and play. Sometimes I have friends that come in to play with me but they make me do all kinds of exercises. I'd rather watch TV and lay on my back then do pushups on my belly. I get lots of red stuff taken from me still, usually twice a week. We are waiting to get a test back that tells us if my lymphocytes are working and hopefully tomorrow we will find out. My cell counts were doing really well until I got sick with my poop and now they all have dropped. Mommy and daddy are very worried because they are afraid I will have to get another transplant but I know that if everyone keeps praying for me and sending me positive energy that things will turn around. I'm having some problems with eating again too. I just don't like to eat or drink anything. The doctors said once I stop my medicine for my yucky poop that I should start feeling better but I dunno we will see. People are telling me that Christmas is coming soon and that a man wearing red will come to see me and bring me presents. I think he came early though because I saw a man through my window last week waving at me and he brought me a storybook. I really don't need any gifts though, I'd rather just have some lymphocytes so I can go home with mommy and daddy. They tell me it's really nice there and I will like it alot. Anythings got to be better then this place.

Thursday, December 7, 2011

Mommy has been hibernating for the winter and hasn't had time to help me write in this blog so daddy is helping me! He says that I should tell everyone that I have been doing pretty good for someone who was very sick just a few months ago. I guess daddy spent his birthday driving a truck from one hospital to another. He and mommy rented a truck because there were no planes for them to use and they had a lot of things to bring back to Halifax with them. I took the same plane back to Halifax as I did going to Montreal but I left the day after mommy and daddy because they drove. I spent the night at the hospital with just the nurses so needless to say I really missed mommy and daddy but I still had fun. I reallysdsgvfvdhdfhasuygu ,l;dlkdjhA dad!! Stop that! Daddy just mashed all the keys when I was trying to type! He's so silly! Mommy and daddy have a new apartment now. It's close to the hospital so mommy and daddy go back and forth from there to here. One night mommy stays with me and the next night daddy does. Dad must be working again now because some mornings he leaves really early and hes wearing fancy clothes with a big hat! I know how big the hat is because he put it on my head one day and it covered my face! Mommy says he looks dreamy in his uniform. I dont know what the means but when she says it she drools just like I do sometimes! When daddy goes to work I spend a lot of time with mommy because its just the two of us for most of the day. I get really excited to see my dad when he comes home though, I really love my dad! Daddy says that people tell him we lohbjfbdv v kdsol,;']LNSa[ dad!! As I was saying people say we look the same so maybe I will be dreamy too someday? Daddy says as long as I dont get a hairline like poppy and most of daddy's friends then I should be a good looking boy! I hope so! Anyway, the only thing bad to tell everyone is that I have a problem with my poop. I guess it's called CDif. Mommy and daddy are worried but I feel pretty good. Daddy was supposed to go away to see my godfather Josh this weekend but he stayed here because of my poop! Thats a pretty good daddy to stick around for stinky poop! I have a new line thingy in my chest now. The last one came out a bit so they took it out all the way and put in a different one called a port-a-cath. This one should be a good one and stay on for a while. I was sleeping the whole time that they put it in. When I woke up mommy and daddy weren't around but then they came to see me a few minutes later. Mommy was crying before I went to sleep and she cried when I woke up. She cries more than me! Okay well that's all for now! Mommy will help me write again next time! Daddy is asking for everyone to let him know if they read this new post so that he knows people are aware that it's updated!

Thursday November 3rd 2011

Womp womp...no test results for me today. The doctor came to see us and said the laboratory didn`t test my blood. They forgot it I guess, imagine forgot it! I thought mommy was going to scream because we have been waiting all week for this very important news. Now we have to wait until Monday to hear anything. Monday? Are you sure Monday? Not Tuesday but Monday? Grrrrr...more waiting...story of my life. To top off the day I had to get poked with one of those big sharp thing again. I thought all that was over but I needed some medicine to help with my immune system. The doctors said it should help to prevent a cold or flu. All I know is that it hurt really bad but mommy and daddy snuggled me after it was all done. I love my mommy and daddy.

Wednesday November 2nd 2011

Yesterday I was supossed to have a big surprise to tell everyone but it didn`t work out for us. The big surprise is now put on hold until a later date. Today is the day we waited a week for to hear about more test results. They took some red stuff on Friday to tell if my precentage of donor cells has increased but of course more waiting. The doctor said the results didn`t come back yet so we will have to wait until the morning. I think mommy may just go crazy with all this waiting but one more night it is. Earlier today I had a little accident with my tummy tube. I was playing with some lady and I got really excited and grabbed my face and I "accidently" grabbed my tube instead. Woops! The nurse had to put it back in but atleast I got a few hours break from it. I wish They would just leave it out all together but the doctor said I have to eat more first. Yuck! I hate food.

Monday October 31st 2011

Happy Halloween!!! Mommy and daddy bought all kinds of treats for the kids at the hospital. They gave bags to all the sick kids just like me who have had transplants. They could only have certain kinds of treats and everything had to be cleaned before they got them. I even got some treats too! Well mommy and daddy did because I can`t eat any of that stuff yet. I got dressed up as a tastey hamburger and people tried to eat me all day long. The nurses and doctors kept saying "mangé mangé" to me, I guess they thought I looked delicious.These people came from the police station and gave me a calender and some pictures of Disney World. They said some day I`ll be able to go there and mommy says it`s the most magical place on earth. When I get bigger I get to make a wish for anything in the world. Maybe that`s what I`ll wish for, a family trip to Disney World. One of my transplant friends wished for grapes from sobey`s. Too bad he can`t have them right now but maybe some day he`ll get his wish.

Friday October 28th 2011

We waited all day for the doctor to come talk to me, mommy, and daddy. He said they were`nt really impressed with my cell counts but are hoping with time they will increase. Because they are so low when I go back to the IWK I will have to stay in a special room for a while until my counts are safe. No surprise there, we are all used to being in isolation now anyway and its so much cleaner than having people around me all the time. I know my family won`t like it but I`m the most important person right now and mom says everyone will have to listen to her rules whether they like it or not. Mommy is very protective of me so I know she will keep me safe. They took some more red stuff from me today to test my counts once again. It takes so long to get the results back but we should have them by Wednesday. Doctors say maybe, just maybe, I`ll be able to go back to Halifax within the next week or two. They say theres nothing else right now they can do for me so it`s just a waiting game to see if this transplant is going to pull through or not. I sure hope it does.

Wednesday October 26th 2011

After a week of waiting the news about my graft finally came today. I thought mom was going to have a stroke waiting for the results. She couldn`t sit still all week long but today was especially bad. First this morning some lab work came back which didn`t show much promise but later on that evening the doctor came to tell mom and dad that the precentage of gabby`s cells in me increased from 22-29%. It isn`t much but it`s a start. The doctors were just glad that the numbers didn`t go down and so was I. Hopefully after some time the numbers will grow and grow and I`ll finally be able to go back to the IWK. I have to meet with another doctor on Frday so he can tell us a timeline...whatever that is supposed to mean, I just hope it`s good news.

Saturday October 22nd 2011

Happy Birthday Muma I Love You! Mommy and daddy are going out tonight to a hockey game. Daddy bought tickets to see the Monreal Canadiens play the Toronto Maple Leafs. I don`t know who is going to win but dad dresses me in a Montreal outfit all the time so I guess he is hoping for them. I don`t think mom really cares who wins as long as she gets some time outside, oh and gets some cake. Have fun mommy and daddy :)

Thursday, October 20, 2011

It's funny how news can change so fast. Today me, mommy, and daddy got some bad news. It turns out that the cells I got from my transplant didn`t work the way the doctors thought they would. Right now I only have 22% of Gabby`s cells when they thought I would have 100%. We are all so disappointed, especially mommy. The doctors thought this would be one of thier easiest transplants yet but like mommy always says, if anything bad is going to happen it will be to us. They took some more red stuff from me today to see if my counts increase or not but we have to wait a week for the results. If they don`t increase that means I will have to have another transplant. I really really hope I won`t need another one. To top of the day the nurse had to put the tube back in my nose because I`m not drinking enough milk. The doctors also had to increase my medicine in hopes that this will help with the cell counts. Today was not a good day :(

Wednesday October 19th 2011

The doctors said I`m doing so great. They are very confident that my transplant was successful but we have to wait until tomorrow to know for sure. It is such a big day and I am so nervous. They gave us some really good news but its a surprise and mommy says I cant tell anyone. I'm still not eating very much, today was the worst day in a long time. Hopefully tomorrow I will drink a little more. Mommy says my cell counts are growing and growing. My neutrophils are at 1.0 and my lymphocytes are at 0.9. I'm just a cell making machine! The doctors decided I dont need to have red stuff taken from me every day. They can take it from me every second day now. I'm sure mommy and daddy wont be able to sleep all night because they will be so excited to hear some good news tomorrow!

Tuesday October 18th 2011

It`s official my counts are going up! They poked me this morning to get some red stuff instead of taking it from my tubes and it worked. My neutrophils are now 1.0 so that`s great news. Now we are just waiting for the news about the cells being mine or Gabby`s. I really really hope they are hers. Me, mommy and daddy could really use some good news right about now. Mommy and daddy need a pick me up because they have been feeling a little down lately. But now that my neutrophils are so high we don`t have to wear any more masks or gowns so thats the best news we got in a long time. Hopefully more good news to come...

Sunday October 16th 2011

Just when me, mommy and daddy were having fun with the no mask and gown thing my counts dropped. The doctors think it might just be a bad sample of my red stuff because it isn`t normal for my numbers to drop so low and so fast. They said they aren`t too worried and they will just check again in the morning. Mommy is now scared to death that I`m going to catch something so she put her mask back on and made daddy wear his too. I really hope my counts are back to normal again tomorrow. I had some lady come to see me who brought me some toys to play with. She said she wanted to see if I am doing all the things I should be for my age. I guess because I`ve been stuck in a room for so long I`m behind but she said not to worry because all the other babies in the hospital are the same way and once I am better I will catch up in no time. She also brought me a mat for the floor. This way I can have a much bigger place to play then just on mom or dads bed. Mommy cleaned it off 3 times and then put a blanket over it. No one is allowed on it unless they are sterilized by my mom. Actually no one is allowed in my room unless they are sterilized. I have this really nice man who comes to clean my room everyday. He sings me all kinds of songs in spanish and makes me laugh. He calls me his big boss and says I make him work because I watch everything he does but I`m just curious. Mom says I`m a people watcher just like her haha.

Friday October 14th 2011

Good news from the doctors today. My lymphocytes and neutrophils are hgh enough that mommy and daddy can take thier masks and gowns off. It`s been so long since I`ve seen thier faces. They were starting to look just like everybody else so I`m glad I can finally see them smile. Lets hope my counts stay up because I`m enjoying having my mom and dad back. I threw up again this morning. This is getting so old. This time daddy was with me and he was soaked. Hopefully soon I will want to eat again and keep everything down.

Thursday October 13th 2011

I threw up all my breakfast again this morning. The doctors don`t have a good reason why I`m getting sick but they think it`s just all that I`ve been through. The nurse had to put me back on an IV today because she had to take red stuff from me all day. The doctors want to test how much medicine I have in my red stuff to make sure it is working right. I still don`t drink enough milk but for some reason they stopped my tube feeds. It doesn`t really matter anyway becuse I pulled out my tube today haha. I was tired of that old thing it as annoying. The doctor decided to leave it out and we will see what happens.

Wednesday October 12 2011

I`m FREEEEEEE!!! No more IV fluid and no more tube feeds starting today. I still have my big IV in my chest and my tube in my nose but those are just incase I need them again. No way do I want to be hooked up to that again so hopefully I eat more and more so that won`t happen. The doctors say I`m doing great and took some red stuff today to see if Gabby`s magic is working. They said we will have to wait for a while before the results come back but that is no surprise because that is all we do anyway wait wait wait.  My cells are slowly growing in numbers but they have a long way to go before I can get out of this place. Hopefully the doctors will let me go back to the IWK by Christmas if everything continues to go well. I`m starting to really like my cereal now too and I even try to feed it to myself sometimes but mommy says I make too much of a mess. Every once in a while she will let me have the spoon and I get to be a big boy. Mommy said she would buy me anything I want if I keep eating. She even said I could get a car. I think I could convince mom and dad to get me anything I want right about now haha...Suckers!!!

Tuesday October 11th 2011

No more IV medication for this kid. Today the doctor said it was time to take me off my IV medications and take them all by mouth. I am so pumped that I don`t have as much fluid going into me but not so pumped for the taste of all my new meds. EWWWWW!!! The nurses say I have to take my medicine at the same time everyday and with the same milk or it won`t work right. So far I only had it once but it tasted yucky. I`ll have to take the medicine for a long time so that the magic Gabby gave me will work. Woop woop...peace out Day 20!

Sunday October 9th 2011

Happy thanksgiving! Today I am thankful for my mommy and daddy, my nan and papa, my nanny and poppy, all my aunts, uncles and cousins. I am especially thankful for my cousin Gabby and the new magical bone marrow that she gave me. I am one lucky little boy. I am also thankful for all the people that have been helping me, my mom, and dad out over the last five months. I love everybody!

Tuesday October 4th 2011

Daddy bought me and mommy a present today. It was a digital picture frame and filled it up with all kinds of pictures of me. All the nurses stand there and oohhh and ahhhh over me. I`m such a cutie. I`ve been having a little trouble eating lately and I`ve been throwing up what little food I do eat. The doctors keep saying it will get better but for now they have to keep the tube in my nose, it is so annoying. Mommy also tells me I`m losing my hair. Every time I move my head I get hair in my eyes then when I rub them I get my hands on my tube. I almost got it out a few times but mommy and daddy keep catching me pulling on it. The doctor told mom and dad my cells are starting to come back but they aren`t sure if they are my cells or Gabby`s. Eventually they will be able to test the cells to see who`s they are. I really hope my cousins magic works.

Saturday October 1st 2011

Happy Birthday Nan! Sorry me mommy and daddy can`t be there to celebrate with you but I`m kinda stuck in this hospital room for a while. Maybe next year we will get to spend your birthday together and eat lots of cake. You`ll have to make me my own cake though because I can`t eat anything already made from a store or share anything with anyone. I have lots of rules now about what I can and can`t do. Oh and mommy told me to tell you you`ll have to get rid of the carpet in your basement because I can`t be near that either. Your doggie will have to go somewhere for a vacation while I`m visiting too cuz no pets for me. Make sure there is no plants around either oh and I can only eat from sterile dishes and sterile food. GEEZ sorry for all the rules but that is just the begining.

Friday September 30th 2011

Day 9 and not too much has changed. I got more IVIG today, the same as every other Friday. I still am not enjoying my milk. Mommy tries her best to feed me all the time but I`m just not that interested. I usually drink a few onces and that`s enough to keep me satisfied for a while. This lady comes to see me everyday and tells mommy that I am getting enough nutrition but I don`t think mommy is so convinced. She says if I was getting enough then I`d be gaining more weight and not just fluid weight but it`s so hard to tell what weight is good and what is bad. Mommy feeds me that cereal stuff every morning too but it doesn`t taste the greatest. I just like to spit it out and get it all over my face because it makes mommy and daddy laugh. They are so easily amused.

Tuesday September 27th 2011

The nurse told mommy and daddy that I would be getting some more red stuff today. I guess I don`t have enough in my body because all my cells are dieing from the chemo. I don`t really mind getting the red stuff it just takes a long time and it means more picking at me by the nurses. I just don`t like when they put that tight thing on my arm because it sqeezes me really tight. Mommy and daddy made some new friends today too. They have a little boy just like me only he`s a bit older then I am. He has to get a transplant too. Mommy and daddy were so excited to meet them because they speak english and can finally share stories about the two of us. We are both one in a million...so I guess we`re two in two million now.

Monday, September 26, 2011

Last night there was a hockey game at home, in Cape Breton. The game was in memory of a special man and his family decided to donate money to a child in need every year. This year they picked me! There were lots of people at the game. Nan and papa, aunt Lisa, Madi and Ali were there. Mommy said there was a group of cheerleaders there helping out too. They made lots of money to help mommy, daddy and me while we are in Montreal. Oh, and I should mention that I am eating real food now! Well, I guess you can call it real food, its really just a bunch of mush that mommy shoves in my mouth. She says its called cereal and she feeds it to me in the morning when I wake up. At least its a change from the milk, it really doesnt taste too bad. Mommy and daddy say its made my diapers stinkier! Glad I dont have to change them!

Saturday, September 24, 2011

I'm still not eating. The nurses and doctors gave me a few chances to start eating more but said that they could not wait any longer. So, today I got my feeding tube put in. The nurse put it in in the afternoon and they were going to start feeding me through the night. When the night time came it turned out that my feeding tube was not in the right place so they had to remove it and start all over again. Of course it wouldnt be right. Mommy says if anything could happen it would happen to me. Tomorrow at home they are having a special hockey game and all of the proceeds are being donated to me! Mommy and Daddy say there are these nice people who decided to help me for a very special cause. I'm such a very lucky boy to have so many people who care about me!

Friday September 23, 2011

Today is day 2 of my transplant. I did not have the greatest day today. I still wont eat and I still have lots of fluid but they finally got my pressure under control. Because today is Friday that means its antibody day. I'll have to get antibodies every Friday, even when I go home to Halifax. Not much really happened today now all we do is wait. Mommy asks for my lab work everyday and we are all waiting patiently to watch my good cells rise.

Thursday, September 22, 2011

This morning started off with me being cranky so they gave me some medicine that was supposed to help with my of pain from everything. Mommy said it is called morphine. Today I got the second half of my transplant. everything went much better today than yesterday! I cried a little bit but the taste in my mouth wasnt as bad. I spent most of the aftenoon sleeping. I'm still not eating much but at least I wasnt as cranky as yesterday. Right after the transplant the nurse gave me some medicine to help me pee again and I peed a lot! It went right through my diaper, then through my pajamas and all over mommy. Daddy laughed and took pictures of it! We were soaked in pee! Later in the day I needed more of that morphine stuff because I started to feel a little sore again. Tomorrow they are supposed to give me some cereal. Yayyy!! Solid food! Maybe I will like it better than my milk and actually want to eat something.

Wednesday, September 21, 2011

September 21st, the big day! It finally came! It started this morning with giving me some medicine and then it was on to the transplant. It was all the red stuff they collected from Gabby. There was a special nurse who came to help put the red stuff into me. As soon as it went inside of me, I got this funny taste in my mouth! It was so yucky! Mommy and daddy could smell it, they say it smelled like metal and ketchup. The doctors told us that I was going to smell like that for a few days. After all the red stuff went inside of me, they gave me some more medicine. I had a reaction to one of the medicines and it made me have muscle spasms. My eyes rolled back in my head and got stuck there and my neck went sideways and got stuck like that!! It was awful, it was so painful! It happened on and off for almost six hours. Needless to say mommy told them not to give me that medicine anymore. Because of my reaction, they couldnt do the second half of my transplant today, so the doctor decided to wait until tomorrow. After a while I felt a little better but I still didnt feel like eating at all today. Something funny is happening when I pee. The doctors say its normal but all this red stuff is coming out of me! I was really cranky all day today but what else is new?!

Tuesday, September 20, 2011

Yesterday and today were supposed to be rest days but I didnt do much resting. Yesterday they adjusted my blood pressure medicines and today it finally seemed to be a little better. My breathing is still very fast but tomorrow mommy is going to ask the doctor for some extra medicine to make me pee. Tomorrow is the big day finally. I'm a little nervous but at least tomorrow is day 1 and I can start counting to day 100. Hopefully then I can go back to the IWK. My doctor told me, mommy and daddy today that tomorrow is the day they cure me. I really, really hope he is right.

Sunday, September 18, 2011

Yayyyy!! Today is my last day of chemo!! I cant wait to be done. I'm still pretty cranky, the nurses say its because of the Ativan but that will be over tomorrow. I'm doing okay with the eating but I seem to be having a lot of gas. I spent a lot more time with just daddy this morning because mommy was really tired so she didnt get to the hospital until after lunch. I think I'm giving mommy and daddy a hard time with my crankiness, but only a few more months and then hopefully all of this will be behind us.

Saturday, September 17, 2011

I've been pretty cranky the last few days. Nurses say its from the Ativan but I dont know, I think its from ALL of this medicine that they have been pumping into me! I spent most of the last few days screaming. I'm not giving mommy and daddy a break at all! Of course they wouldnt have volunteers available to give mommy and daddy some alone time. My blood pressure is still way up, they keep increasing my medicine to help with that. All of these fluids dont help much with keeping it down. If anything, they are making me puffy and making it harder for me to breath and that sucks! Daddy was on the phone with someone yesterday talking about me and telling him our story so far. I guess its for some kind of paper so that everyone can read about me and my sickness. I think I heard daddy say its called the Halifax Herald and it should be out mid next week. Why someone would write about me, I dont know. I guess I'm just that special.

Wednesday, September 14, 2011

I am not feeling like myself. The nurse gave me the medicine that made me sleepy and cranky. It was to make sure I didnt seizure from the side effects of the chemo I guess. I did manage to eat today and everyone is still very impressed by that! They only had to give me one chemo today and they didnt have to take as much red stuff as they did yesterday. But, my red stuff in my body is very low so I had to get some and mommy and daddy were told that wont be the last time that happens. I might have to get red stuff put in me 10-15 times during my stay here! I have been having a lot of problems with my pressure and with being puffy. The nurse gave me some medication for both and it seems to work for a little while. Daddy said the chemo seems to give me more of a personality. I have been very demanding lately and they say there doesnt seem to be much they can do to please me. Oh well, Im just a baby, I can get away with acting like that!

Tuesday, September 13, 2011

My chemo started today. My favorite nurse was here today and when she came in my room she noticed that I was all puffy. It was from all that fluid that I got the night before! I knew that was going to happen! I got two different kinds of chemo today and after the nurse gave it to me she took a bunch of red stuff. The nurse said I would probably need to get a bunch of red stuff because she was taking so much of it from me to get tested. Day one of chemo wasnt so bad, I actually felt like eating today and everyone seemed very impressed by that. It wasnt until the night time that the problems started. They gave me some medication to help me pee out all the extra fluid that was making me so puffy. My pressure went up really high and the nurse had to call the doctor to get some more medicine to give me. Eventually it went down and I felt a little better. My cousin Gabby came to the hospital today and I got to see her through the window. She is sleeping here tonight in a room just like mine! Gabby is very special, she has magic in her bones! Tomorrow the doctors are going to take some of Gabby's magic and save it for me because I have no magic in my bones. My cousin is so brave to give me her magic like that! I love her very much!

Monday, September 12, 2011

Today was supposed to be a rest day. I didnt do much eating but mommy and daddy tried to force me to eat. I just dont feel like eating. The nurse came and took more red stuff from my big line, atleast it doesnt hurt now like it used to, but they take lots of blood. My chemo starts tomorrow and they gave me a bunch of medication before it starts. They hooked me up to a big pump and put a bunch of stuff into my big line. They told mommy and daddy it was fluid to flush out my kidneys so the chemo wouldnt be so hard on them. I just hope I dont have trouble breathing like I did the last time when they gave me all the fluids in the IWK.

Saturday September 10th 2011

I am so sleepy today because I was throwing up all night! I didnt really feel like eating all day today but at supper time I did pretty good! The nurse gave me some medicine and then I threw up all my milk.
I still didnt lose the fluid weight from yesterday's surgery. The doctor told mommy and daddy that I should lose that extra weight soon. Because my kidneys arent working 100%, it takes a little longer for me to pee everything out. I didnt give any smiles today because I just wasnt feeling like myself. The nurses told me today would be a quiet day and they wouldnt have to poke me and take any red stuff. They said I could spend the day relaxing, but instead I spent the day being cranky and sleepy. I am really sore under my arm where they put in my big IV line. It hurts when mommy and daddy pick me up under the arms and I cry! My big IV started bleeding today but they tell me that's normal we just have to keep an eye on it. Maybe tomorrow I will feel a bit better!

Friday September 9th 2011

I was so hungry this morning when I woke up it was awful. I didn`t eat since last night because they wanted my belly to be empty for surgery. I was supposed to be there at 9:45 but they were running late so I didn`t even get in until 11:00. They had to put that thing on my face again so I wouldn`t catch any bugs on my way to the operating room. There were so many little kiddies there that I didn`t feel so scared. They were all being so brave so I had to be brave too. The nurse wrapped me up and took me from mommy and daddy. Mommy was so sad she cried the whole time but I`ve been through so much that I was tough. They told mommy and daddy they would put me to sleep with a mask first then keep me asleep with some medication in an IV. Thank goodness I was asleep for that IV because I really didn`t want to get poked again. They told mom and dad to stay in the hospital just incase they got called back to the operating room and that it should only take two hours. I guess something went a little wrong during the surgery because I was there for an extra two hours. They told mommy they had to fix my central line after it was already done and they had trouble getting my bone marrow so they had to poke me four times. Twice in the back and twice in my shins. When I finally was done and came back to my room I was so sleepy because they gave me all kinds of medication. I had wires on me everywhere because they wanted to keep a very close eye on me. The last time I had my PICC line put in I stopped breathing so this time they hooked me all up to monitors and of course I had a terrible night. I needed a bit of oxygen to help me breath and I threw up all of my medication twice. I got some stuff to make me sleepy from a needle and so I wouldn`t feel so sick anymore. It worked for a little but I was cranky all night long. Mommy stayed up with me because she was so scared but I was just sore and hungry but sick to my belly. All I did was cough cough cough and my throat was so sore from the tube they had down there. I can`t wait until tomorrow comes so maybe I won`t feel so yucky. Ughhhh so exhausted...I hope this will all be over soon but I`m afraid its just begun.

Thursday September 8th 2011

Another horrible day today. Poke poke poke. I woke up this morning to some nasty lady poking at me and moving me around my bed. She didn`t even say hello to me, mommy, or daddy just walked right in the room and started. Mommy got really mad at her because she wanted mommy to keep my hospital bracelet on all the time but it cuts my leg so I don`t like to wear it. She wan`t very nice at all and I thought mommy was going to yell but she just left the room and daddy stayed with me again. No red stuff again that time so more nurses came to poke. Still no red stuff so another nurse. Still no red stuff and finally one last nurse came and mommy stayed this time. She was so nice to me and talked to me the whole time. She had to poke me in the head but it was so quick I didn`t cry that much. Mommy was so happy they got red stuff that she thanked the nurse over and over again. It was another bad day for me but the nurses tell me that I shouldn`t have to get poked anymore because tomorrow I will be getting my central line put in and they can take all the red stuff from there from now on. I`can`t wait for no more pokes but I`m kinda scared to get put to sleep for my surgery. They told mommy and daddy it should take two hours. I will get my central line and they will take some bone marrow. I really hope everything goes ok.

Tuesday September 6th 2011

I went on another adventure this morning downstairs with mommy and daddy and the nurses put this thing over my face. Mommy says its to keep the bugs out but I don`t like wearing it at all. It gets way too hot under there and I can`t see anything. I got poked in the hand and they put this stuff in my veins so they could do a test on my kidneys. After it was over they sent me back to my room where I got to finish my breakfast. A little while later some nurses came in my room to poke me some more and try and take some red stuff. I hate being poked at it hurts me and I cry. Sometimes mommy cries too but most of the time she leaves the room and daddy stays with me. She used to stay with me all the time but she says it makes her sad to listen to me crying all the time. After they poked me a bunch of times they said they couldnt get any red stuff so I had to go back downstairs to be poked again down there. I got poked a bunch again and still no red stuff so that meant they had to hold me down under this light to take pictures of my blood instead. I had to do it every 30 minutes five times. It was the worst morning yet. They poked me nine times all together and still didn`t get any red stuff. I was so tired I slept for almost nine hours that night. Hopefully tomorrow is a better day.

Monday September 5th 2011

The nurse tried to take some red stuff from my IV today. Just my luck, nothing came out. My IV was broken so they had to take it out of my arm. I`ll have to get a new one tomorrow to last me until I get my big big one in my chest. Mommy put a bag in my diaper today to try and collect some pee for a test. She stuck it right to me. I`m sure you know where she put it. It wasn`t too bad going on but coming off was horrible. It was so sticky she nearly took my goods right off. I had to get a test done on my poop too but that wasn`t bad for me. Mommy just saved my diaper for the nurse and she had to scoop up my poo. Pretty gross if you ask me but pretty funny too.

Saturday September 3 2011

I have PERFECT hearing!!! One more thing to tick off the list. All my scans came back great too so I have strong lungs, good hearing, the pictures of my kidneys are great, no UTI, and my liver is holding its own. The only thing left is to have a kidney function test because the last one I had said my kidney`s weren`t passing enough blood through them to filter stuff out. That happens on Tuesday so we will see how that goes. Otherwise I am pretty healthy, except I have no immune system. But...that is coming soon.

Friday September 2nd 2011

Today I got my hearing tested. Since the doctor told mommy and daddy that I had a 50-60% chance of not being able to hear or having a hearing problem they were pretty nervous to get the results. This lady put these funny sticky things on my ears and daddy laughed at me and took pictures. He said I looked like a transformer. Optimus prime to be exact. I didn`t think I looked that bad. Mommy seemed to think I looked cute. I know the nurses think I`m cute for sure. They look at me through the big glass door and say I am "tré cute". One nurse even said I have an "amazing face". I`m not even sure if that is what he meant to say because sometimes they get confused with thier english. Everyone talks french around me, even daddy. Mommy doesn`t have a clue what people are saying. She refuses to even say please and thank you in french. I`m sure she will lighten up eventually. ha ha

Thursday September 1st 2011

I had quite the busy day today and I`m sure it isn`t going to be the last for a very long time. I woke up to more people in white coats taking red stuff from my foot. I thought that was over but I guess here in Montreal they have to do that too. After I ate my breakfast the nurse came to tell mommy and daddy I had to get some scans done and they might have to make me sleepy if I don`t cooperate. I plan on being a good boy because I dont like the idea of going to sleep with medication. The nurse had to put a big pokey thing in my arm then taped me all down with a board. She said it would only be in for the day but I still have it in now. Once she poked me then she said she might leave it in until I get my line for my chemo. Ughhh I wish they would stop poking. After the poke I went on an adventure outside of my room. Mommy tucked me in a blanket and put this funny thing over my face that everyone wears when they come to see me. Mom stayed while they put me in this big round machine and put stuff in my veins to take a picture of my lungs. I was so good they gave me some apple jelly MmMMm. After that they took me in another room where some man put cold gell all over my belly so he could take pictures of my insides. After all that I got to eat my lunch then got more red stuff taken but this time no poke. It came right out of the tube thats in my arm. The doctor then came and asked mommy and daddy`s permision to take some bone marrow from me as a back up just incase my transplant doesn`t work. Then they can put it back into me and send me to L.A. for gene therapy. I really really hope it works the first time. Another doctor came in after that and poked around at me. She was the 4th person today to look at my bum. Man my bum must be some cute. She gave me a new medication that tastes yummy. More tests in store for tomorrow and more doctors to see. Ohhh Joy!

Tuesday August 30th 2011

I made it safe and sound to Montreal. The plane wasn`t as scarey as I thought but I guess mommy didn`t do so well. She spent the plane ride crying because she didn`t want me to be left alone. I did ok though I just entertained the flight team with my smiles and giggles. Mom says I`m going to be speaking french before english because all the nurses talk to me in french. Mommy and daddy have no idea what anyone is saying to them and its only been day one, they are frustrated already. We have so many rules in this place, even more then the IWK. Poor mom and dad they can`t even stay together. They have to take turns spending the night with me and I`m not making things very easy on them either. I don`t want my milk and I`m cranky all the time. The doctors say its just because I`m at the point where I just really need the transplant soon or I`ll have to go back living off of tubes. I certainly don`t want that so I hope the ball gets rolling soon.

Monday August 29th 2011

To mommy and daddy,

I know you have a lot on your plate right now with me being so sick but I promise it will get better soon. It's ok to be scared because I'm a little scared too. Some day we can look back on this journey and you can tell me stories about how strong I was. Mom, just lean on dad when you are stressed and know that I've been through so much already and did just fine. Dad, if you feel sad it's ok to ask mommy for a little help. Remember to be there for each other no matter where this adventure takes us. Hopefully we'll be home before Christmas so you can buy me lots of presents :)

Love you forever and always,

Brayden xoxoxo

Friday August 26th 2011

So I guess we are getting a hurricane here on the east coast so the life flight team had to cancel my flight for Monday. I'm now leaving for Montreal first thing Tuesday morning. I have to fly on a plane all by myself. Well not completely by myself but without mommy and daddy. They have to travel on a regular plane because there is too many restrictions on my special plane. But don't worry mom and dad I'll be ok, remember I'm a pretty brave little boy. Mom and dad went out tonight to a wedding and I hope they had fun. No need to worry about me, because the nurses took very good care of me for the night. I got to spend some quality time with my nan and nanny anyway. Mommy got special permission for them to come watch me for a few hours each. I had fun but I did miss you mom and dad.

Thursday August 25th 2011

Today we got a very special phone call from some very special people. Uncle Vincent and Aunt Rhonda called mommy and told her and daddy to go on skype to test it out. They said they had a late aniversary gift for mommy and daddy. It turns out my cousin Gabby is a bone marrow match for me. Mommy and daddy were so excited to hear the good news and Gabby was there on the computer too. She can't wait to be able to hold me and I can't wait to play with her. I think once I get a little bit bigger we can get into lots of trouble together. Aunt Rhonda and Uncle Vinnie always said that Gabby was just like my mommy so now it must be true. The doctors said she is such a close match that we could be twins. She is a 9/10 for all the tissues. Mommy, daddy and I are so so so happy because this just means I am that much closer to being a healthy baby boy. I know it will seem a little scarey Gabby, going to the hospital and to be put to sleep but it's really not too bad. I get tests done all the time and if we are like twins then I know you will be tough just like me. I love you Gabby xo.

Wednesday August 24th 2011

Today was a pretty usual day of me being forced to drink yucky milk. I hope they get it figured out soon because this is gross. Mommy and daddy had a meeting today with a cancer doctor. He treats lots and lots of little girls and boys that have to have bone marrow transplants. They are not the same as me though because all of thier blood is sick and only my lymphocytes are sick inside me. We all have to get bone marrow transplants but I don't need as much chemo or get radiation like most of my friends at the IWK. Someday soon I will get to visit all my friends because they have never seen me. Mom says lots of the kids and thier families ask about me everyday. I have lots of people hoping, thinking, and praying for me. I hope everyone prays for all my friends too. We all need the positive vibes our way.   

Tuesday August 23rd 2011

Happy Aniversary Nan and Papa! Guess what? I have a gift for you. I'm going to Montreal Monday :) I know you're going to miss me but you can come visit me after a few months. Today my day started off with the good news then lots and lots of pokes from nuclear people. They pushed this stuff into my arm and came back two different times to take red stuff so they could test my kidneys. I had a really exhausting day. Daddy went to work to take care of some business and I got to see him in his uniform for the first time. Some day I'll get to see daddy at work. Maybe I'll get to go on a big ship just like him. Mommy had a few meetings today to make some more important lists. Mommy and daddy have lots of stuff to get done before we leave. Only 5 days left. 

Monday August 22nd 2011

Mommy and daddy had a big meeting today with my whole team of doctors, social workers, nutritionists, nurses, child life specialists, physiotherapists and the list goes on. I am a very popular guy you know. They said we have to start getting lists together to prepare for our big trip. They said I have to get a bunch of tests done before I go. I'm not looking forward to any of that of course. The dietition decided to change my formula from the really strong stuff to a little less calories. She also took all the salt out of my milk boooo I liked it the way it was and now I will show them because I'm not drinking it. Ewwww!!! I want my old milk back. They said I poop too much when I drink such strong formula and it makes my bum red and sore. I think I'll take the sore bum as long as I get my milk back. They gave mommy this weird sticky stuff to put on my bum with powder too. I guess it's ok. Alteast it coats my bum.

Sunday August 21st, 2011

HAPPY ANIVERSARY MOMMY AND DADDY!!! I have a present for you but it's going to be about 6 months late. I'll give you a hint...someone will be able to leave the hospital :) I'm getting more and more excited with every week that passes. It's getting closer and closer to the big day. I hope my mommy and daddy have a great date night. Love you mom and dad. xo

Friday August 19th 2011

So I'm a growing boy. I can't fit into most of my 0-3 month pj's so I've upgaded to 3-6 months. Mommy loves my chubby legs and arms, she is always squeezing them. I also now wear size 1 diapers fianlly. Yeee Haaaa!!! Daddy is going out for the night so I get another night hanging out with my mommy. She plays with me for hours with all my toys. Sometimes she forces me to lay on my belly and do exercises. Ughhhh she pushes and pushes me to do my very very best trying to hold my head up. Sometimes I wish she would just leave me alone but she says I'll be just like all the other babies my age if I keep up the good work. Mommy gets to have a break tomorrow night and I get to spend some man time with dad playing video games. Well dad plays and I just watch. He says I'll be playing with him and his buddies in no time but mommy said no way to that. She says I should be out rolling in the mud and playing with frogs and bugs. I can't wait to do both.

Wednesday August 18th, 2010

Yay daddy came back today he is feeling much better but he has to wear a mask for a few days just incase.

Wednesday August 17th, 2011

Daddy had to leave me and mommy today. He said he had a scratchy throat. That means me and mommy will be hanging out for the next day or so. The nurses were very busy today with other sick little boys and girls so they didn't get to give mommy a break. Mommy definitely needed a break after being in the room with me for 24 hours straight. Some day I'll be able to leave this room and that way my mom and dad will be able to see all thier friends. Its so close I can taste it.

Tuesday, August 16 2011

Well, well, well...not a very good morning for me. I got a lot of red stuff taken from me and it took four different people to find it. Those ladies who wear the white coats are awful poking me and making me cry. Today I did ok with the tight band on my arm but it was the poke that hurt me a lot this time. I cried for about 10 minutes even after it was all done. Mommy picked me up and snuggled me the whole time, that was the only good thing about it. I love snuggles with mom because I fit perfectly in her arms. I love you mommy xo.

Saturday, August 13th 2011

Mommy and daddy promised me a party when I got to 10lbs. Well today is the day, I am 10lbs .3oz. No party is even happening, they didn't even buy me a cake. So much for having a good time. All I got was an excited mommy and daddy jumping up and down and smiling. I guess it will have to do for now but I better get a party when I get out of this place or atleast when I'm 100%. Only a few weeks left now until we head out of Halifax to Montreal. I am getting excited and nervous all at the same time.

Friday, August 12 2011

Today mommy and daddy finally got some good news. We are going to Montreal the first week in September for my bone marrow transplant. The doctors tell mommy that daddy is a good match and possibly another match could be in the works. One of my cousins could be even better but even with daddy's bone marrow I have an 85% chance for a cure. The doctors told mom and dad that it will be a long process with many ups and downs but they are confident the end result will be good and I will finally be a healthy boy. They keep telling me I'm a speacial boy. I don't know how being poked and picked at all the time makes me special but I know I get to fly on a private plane thats being used just for me. I'm just like a superstar. I'm so excited to play with all my cousins when all this sickness is over.

Wednesday, August 10th 2011

Well, mommy has been busy wishing, praying, hoping and dreamimg for a miracle. Everyday she wakes up thinking today will be the day the doctor will give us some good news. She tells me we aren't that lucky and of course no miracle has happened yet. Mommy is waiting patiently to hear from the doctor about a bone marrow match. Two of my cousins have been tested and I'm feeling pretty positive about the results. Fingers crossed everyone. I am feeling pretty good though. I finally have no tubes at all except for an IV of antibodies I have to get every 2 weeks. I haven't been poked with the big needle in a while either because my lymphocyte count is too high. The higher it goes the more chemo I'm going to have to get and I don't want that at all because it will make me sick. Mommy says I am the talk of the hospital and everyone everywhere is talking about me. Sometimes she tells me stories about hearing people in the hallways talking about me and they have never even met me, mommy or daddy. Mommy said she always knew I'd be a popular guy. I'm growing so big now I'm almost 10lbs. Mommy and daddy are going to celebrate when I hit the 10lb mark. Too bad I won't get to have a party but mom said on my first birthday I'm going to have the biggest and best party Cape Breton has ever seen. I've been working so hard with my physiotherapy that I can sit up in my bumbo chair with no help at all. I'm trying my best to lift my head when I'm on my belly but I'm not quite there yet. I had some visitors on the weekend. I got to see my cousins...they were making faces at me through the window. They are so silly. I didn't even know what they were at first because I'm not used to seeing people without masks on. Mommy says they all love me so much. I just can't wait to get lots of hugs and kisses from them.

Thursday, July 28th 2011

Uhhhh ohhhhhh today I got a little frisky with my fingers and pulled out my tummy tube. Mommy said she doesn't know how I did it but it wasn't hard at all really, I just grabbed and pulled. Hopefully I'll get it out for good soon anyways. The doctor told mommy today I'm doing so well and everyone is very proud of me. I guess I have to be atleast 5 kiligrams before I can get any treatment and infection free as well. So far so good because today I gained 85 grams. Everyone is hoping that my weight is real and not just fluid again but I'm pretty sure it is because this time I dont have a problem breathing. The doctor also said that I can't gain weight too fast because it'll be too hard on my little body. Gain weight but not too much weight. I dunno it's all too confusing to me. I got to have a nap with mommy today on her and daddy's bed. It was so comfy all snuggled up with mom. We slept for hours. I love my mommy! :)

Wednesday, July 27th 2011

Well I guess I should give an update on how I've been feeling lately. It's been a few days since I kept everyone informed. I haven't had any big changes really besides the fact that I'm doing AWESOME!!! I drink my bottle pretty good most of the time. I'm up to 80mls now but sometimes I only get part of it in my tummy so they put the rest through my tube. Daddy finally let mommy use my tube, he was so scared. She tops me up through it instead of the nurses. I've been growing like weeds too! I'm up to 3850 grams now and mommy said we are going to have a 10lb party so I still have lots of growing to do. Mommy and daddy let me lay on their bed all the time now. I like to lay on my belly and talk to mom and dad. They get a big kick out of me making my noises. Mom and dad have also been leaving me with some nurses so they can go on dates. I'm glad they get to go out but I really wish I could go with them. Today I have to get my sixth needle for my treatment. The doctor only wants me to have it once a week now instead of twice. He said my lymphocyte count is going up too fast so they would need to give me more chemo if it got too high. I definitely don't want that and besides one big poke a week is enough. Oh and I have a new nickname...it's Mr. Cranky pants. Thats what mom and dad call me. I have a lot of calories in my formula which makes my belly sore so I've been doing some crying and just can't seem to get comfortable. I hope my tummy gets used to it because I need those calories to grow and get treatment and get out of this place YaY!!!

Friday, July 22nd 2011

Woooohooooo!!!!!!!!!!! They took the tubes out of my nose and my oxygen is still great. The doctors told mommy and daddy they want me to drink more too and drink did I ever. Five minutes and I downed 45mls, then ten minutes for 55mls, then eleven minutes for 60mls. Dad said I just punished it. Everyone is telling me I'm doing awesome and I think I might believe them. I've been feeling much better the past few days. My breathing isn't so fast, my oxygen tubes are out, and I get to drink food. I smile all the time now and I make noises to let people know I'm around. Everyone seems to get a big kick out of it so I like to keep them entertained. My WBC's are back to normal and my inflamatory markers are down. I got another big poke today for my treatment and only cried for a few seconds. Daddy gave me my sugar and water this time so I got lots. Yummyyyy!!!!! My big tube in my head stopped working tonight so that was an even better reason to take it out. I cried a little but only because they ripped my hair out taking off that sticker on my head. Ouch! Mommy and daddy were so excited that they took me over to thier side of the room. I got to sit on thier bed and everything because I had no IV and no oxygen. Just one more tube to go and I'll be free. We got a little bit of news today about my bone marrow match. It turns out none of my uncles or aunt matches my tissues. My uncle Vinnie is the exact same as mommy though so the doctors might have to test my cousins. Everyone pray I get a match!

Thursday, July 21st 2011

Splish splash in the bath this morning. I think I'm starting to enjoy it a little, so warm and relaxing. I wanted to get all freshened up for all my visitors. Today was a busy day. People were coming in and out all day and mommy and daddy didn't get much of a break. I slept the whole time so I didn't even notice. The doctors said if I was a good boy they might let me drink out of a bottle today. Mommy was so nervous that I was going to choke or forget how to eat. I showed her because I gulped it down in no time. They would only let me drink a little bit but it was better then nothing. They also turned my oxygen down a tiny bit because I was doing so great. Also I might get this thing in my head out tomorrow. All the doctors will talk about it and make the big decision. Mom said she was scared for all the changes but I showed her I could do it. I hope tomorrow they give me even more food. Yum yum!

Wednesday, July 20th 2011

Red stuff, red stuff, red stuff! They got me good this morning with all that poking and took it from my arm again. Mom told them they better get it on the first try and they did. They told me they were impressed with how good I was and of course mommy was there to make me feel better too. She holds my hand, rubs my head, gives me sugar and water and talks me through it. Mommy left today for a few hours with auntie Nicole and Crystal. I got to hang out with daddy for a bit and have some man time. I cried most of the time. I like to test my daddy's patience and he passed the test. I love my dad! The doctors said my chest sounds clear today and they think my infection might be on the mend. Hopefully they are right because I would love to get rid of some tubes.

Tuesday, July 19th 2011

More antibodies today, the doctor said my levels were low again.. Will they ever give me a break I'm so tired. Atleast I didn't have to get poked again today or get any red stuff taken. Daddy went to work today in Halifax. He'll get to stay here with us until all my treatments are done. I'm so happy he gets to stay here because I missed daddy and so did mommy. Mommy said we won't be moving to BC any more because I have to stay close to the hospital after my treatments. Mom said it was the only good news to come out of this whole mess. The doctors told mom and dad today that I have a 40-50% chance of not being able to hear and might have some problems learning when I get older. It's all because of those stupid toxins in my body that are hurting all my organs. Mommy told me not to worry about any of that right now because she will make sure that I am a smart cookie. We've started early doing the alphabet and numbers and Nan is going to buy me flash cards so mommy can work with me everyday. I love you and miss you Nan! xo

Monday, July 18th 2011

I got some red stuff taken from me today. They woke me right out of my sleep. Mommy said she was so proud of me because I didn't cry once. I'm getting used to all this poking. I also got my fourth big poke in the leg for my treatment. I cried with that but thats a really big one. Mommy put me in this thing that rocked me all around today. I loved it! It calmed me right down and I smiled the whole time. I guess my mom and dad like when I make all these faces and noises, they get really excited and flash bright lights in my face. Mom says those will be for facebook. The doctor gave me more stuff to make me pee today too. I wish I didn't have to pee all the time because it burns my bum. Mommy puts all this gooky stuff on it when she changes my diaper. It's so annoying! I try and pee on her every time. I got her and the nurse good today. I peed and pooped all over them. That will teach them for pickin at me ha ha!

Saturday, July 16th 2011

So I guess I missed all the excitement last night. I had such a busy day that I just couldn't keep my eyes open to see everyone at the dance. Mommy said everyone got to see me though so that was the most important thing. Mommy and daddy said everyone was dancing and having some yummy drinks. Mom said she wished her and daddy could have had a few drinks with friends but the three of us were there in spirit. She said people really love me and gave me donations to help with all the expensive treatment I'm going to be getting. Daddy and mommy said they were so greatful to have such amazing people to help us. Mom said I'll get to meet all those people some day. I can't wait! I'll be able thank everyone in person for all the hard work they did just for me, but for now I will say thank you from a distance. From the bottom of my little heart, THANK YOU! xo

Friday, July 15th 2011

I had a rough day today. I got my third poke for my treatment today which I am sort of getting used to. Mommy had to help the nurse hold me down but she gave me this sweet stuff that kept me occupied while the nurse stuck me. I saw mommy cry today for the first time in a while. She said we got a bit of bad news that will set me back again. The doctor told mommy and daddy that I have new stuff growing in my lungs and that none of my medicines are working. I got all new ones today that made my tummy sick so I wasn't very happy all day. Everyone says I go ahead a step and go backwards two. I don't know what they are talking about because I can't even walk yet. Mom did say there was some good news today though, people are having a party just for me. She said there are some very special people in her life that organized a dance. Mom said I'll get to see them all on the computer tonight. I'm so excited to see everybody. I miss having lots of people around. I hope I can stay up that late.  

Thursday July 13th

I had an exciting morning today. Mommy and daddy let me out of my crib and I got to sit in a chair on the floor. Well, not exactly on the bare floor because anything that touches the floor has to be thrown in the garbage. Daddy put a blanket down and they scrubbed all the germs off the chair before I sat down. I got to see a whole lot of new things. My nan and papa were here this week to visit me. They spent most of the time looking at me through the window but one time mommy let them come in the room just for a few minutes to get a quick peek at me. They had to dress up all funny just like everyone else. I also got to see uncle Christopher and aunt Lisa through the window. I miss everyone, especially my cousins. I can't wait to play with them again. Mommy says once I get a bit stronger and get some treatments I'll get to see my family again. Miss you guys...xoxoxoxo

Monday, July 11th 2011

This morning I was really happy to see mommy. I gave her a smile and she went crazy. She told da to get out of bed and come look but he was being a sleepyhead. I'll do lots more of that anyways. Another important day in my treatment today, I got another sharp poke in my leg. I cried again. Mommy says I'll get used to it because I have to get big pokes twice a week. I like the snuggles I get after each poke. It makes me feel better. I love mommy and daddy.

Saturday, July 9th 2011

I went a little backwards today says mom. I had to get those tubes up my nose again to help me breathe. I hate those things. I gave mom and dad another little scare. I'm pretty good at doing that. Mom always says shes getting grey hair from all the stress I give her. I also have another tube that goes down my nose and into my belly. Thats how I get all my milk. If I drink through a bottle I choke and throw up. I'd rather keep the food in my belly. Mommy says it will help me grow nice and strong. I get medication that makes me pee and I always have soggy diapers. Mom has to change my bum all the time because it's red and sore. I cry when I have to get changed. I have this white stuff on my tounge too so I get special medicine to help take it away. Its yummy but I get more of it on my face then in my mouth mom says. Hopefully tomorrow is a better day.

Friday, July 8th 2011

Mom and dad said today was a very important day for me. I started my first day of temporary treatment. They said it's just for a little while until the doctors all over the world make the big decision where I get to go. I got poked in the leg and it really hurt. I cried for a while but mommy gave me lots of cuddles and I forgot all about the pain. I also got antibodies today. This was the second time for those. They will help me fight off tiny germs that might hurt me but not the big ones so we still have to be very very careful.

Wednesday, July 6th 2011

Mommy told me that tonight lots of people are praying for me. People that know my mommy are going to church just for me. It is a special night. Mommy and daddy say thier prayers all the time now. They say everything will be ok and I don't have to worry about anything. All I have to do is grow and everyone else will do the rest.

Friday, July 3rd 2011

Today a man came to see me and put water on my head. Mommy, daddy and uncle Josh were there too. Nan and papa got to see me on the computer and nanny and poppie looked at me through the window. Daddy said Josh was my godfather and he loves me lots. Uncle Josh makes all kinds of funny jokes. I wish we could play but no one can touch me but mom, dad, and the nurses and doctors. Mom says she dreams of the day when I can play in the mud. Me too!

Saturday, July 2nd 2011

Mommy and daddy told me lots and lots of people are thinking about me and sending prayers my way. Mommy said there's a group of girls who love me lots too and they are washing cars today to get me lots of money for my treatment. Mom and dad said I'll have to go on a plane to a new hospital soon to have new people poke at me. I'm not scared though because I'm a tough little man. Daddy said once it is all over we can have lots of fun playing with bugs and germs so I can't wait. The doctors tell mom and dad that I might lose my hair but thats ok because then I'll be like poppie Vaters and hey it's only hair mom says.  

Tuesday, June 28th 2011

Mommy came back today YaY! I missed her so much.

Friday, June 24th, 2011

Today I got to take a trip in a tiny box to a new room. I'm going to miss all my nurses and doctors but mommy and daddy told me I'll make all kinds of new friends on the new floor we are going to. I get a special room and my new nurse said I was the first of my kind to use this room. It has two big doors that have to be shut all the time and everyone dresses funny to come and see me. I get to see mommy and daddy's faces again though and that makes me happy. Mommy and daddy tell me all kinds of good things that are going to happen to me in the next few weeks and months. They said I will be getting a lot of attention from lots of people. Mommy says I'm one in a million. Mommy had to leave today because she wasn't feeling well. Looks like it's goning to be just me and dad for a few days. I hope he knows how to change my bum and put milk in my tummy. I'm going to miss my mommy.

June 19th 2011

YaY! Daddy's home! Daddy was sad when he saw me today but I was so happy to see him. I love my daddy!

Saturday, June 18th

This past week was very busy. Mommy says I'm such a little fighter and I'm so strong. I had lots and lots of tests. Lots of red stuff taken, machines taking pictures of my lungs, heart, kidney's, gallbladder, and stomach, big pointy things sticking in my hands, feet and back, people sticking sticks in all kinds of places but worst of all they cut my hair to put a long tube in my head. It was so exhausting I couldn't take it so I had a little break and stopped breathing. I don't remember what came next but mommy says she was talking to daddy on the phone and heard "CODE BLUE ROOM 734". Mommy said people came running from everywhere just to see me. Mommy said they gave me a good pound on the back and I woke up. I remember mommy crying and the doctors telling her to sit down. They were scared she was going to passout. I was wanted to be snuggled by mom and wanted daddy  to come home. Mommy said daddy was away long enough and was hopping on the first plane home to see me. I'm some special to have a daddy who travels across the country just for me.

Monday, June 13th 2011

I got to drive in an ambulance today. Mommy told me we were taking a trip to a new hospital with all kinds of sick kids. She said the doctors at the IWK are some of the best in the world and they will find out whats wrong with me for sure. It was a long and bumpy ride and everytime I would get comfortable mommy and the nurse would wake me up. They said I was being a naughty boy and that my oxygen was dropping too low. They put this big mask on my face to help me breathe. It wasn't very nice. Mommy was so excited when we finally arrived to the hospital. She said it would all be over soon.

Sunday, June 5th

I got lots of tests done today. Another trip under the big machine for pictures and more red stuff taken from me but this time from my arm. Mommy stayed with me the whole time but nan went for a walk. We both didn't like that part but mommy says I'm tough like daddy. I also got my first IV today. The nurses took me away from mommy for a little while so I could be poked. I didn't like that either but mommy's right, I'm tough. I have this thing on my foot that beeps all the time. It tells the nurses when my oxygen gets low. It beeped and beeped and beeped so they put these tubes in my nose to help me breathe. I don't like them at all so I try and pull them out. Mommy keeps putting mittens on my hands but I fool her because I can get them off.

June 2nd

I went back to see the special doctor today. He said we get to spend the night at the hospital so nurses can watch me. I love being watched. Mommy says some day I'll have to beat the girls off with a stick. Daddy told me he'd tell me all about that stuff when I get older. I get to talk to daddy on the phone everyday, well daddy gets to talk to me most of the time. Sometimes I make some noise so he knows I'm there. He really missed me today.

June 1st

Today I got to see my doctor again. I haven't been feeling so great the last week. I feel hungry but can't seem to keep my eyes open long enough to eat. I sleep most of the day and night away. Mommy tells the doctor my respirations are high. She tells me I'm like a choo choo train huffing and puffing. I had to get poked again today and be held under this big machine to take pictures of my insides. It was chilly in there and I didn't like it. Mommy held me down and I cried but she promised me all the toys I wanted when I got bigger. I also got to see a special doctor today too. He watched me drink my bottle and listened to me with this funny thing in his ears. Mommy tells him all my problems. He picked at me for a while but I just wanted to sleep. He says I have a lung infection. We went home for the night and mommy stared at my the whole time. She loves me lots.  

May 24th

Today my mommy and nan took me for my first visit to the doctors office. I got weighed again but didn't seem to change any since I left the hospital. It's probably just a different scale says mom. The doctor wants me to come back next week just to make sure. I love my doctor, mommy and daddy tell me shes great! Oh and she thinks I'm great too! 

Monday, May 23rd

Mommy and daddy were sad today. Daddy had to leave and go back to work. He says some day soon we will all be together and I can't wait! Daddy gives the best snuggles. He also walks around with me all night long when I can't sleep. I love my daddy! Mommy Gave me extra snuggles today too! We spent the day hangin out in mommy's bed. That's my favourite place to sleep these days.

May 16th

Ohhhh Ya! I get to go home again for the second time but I still have to come back to the hospital a few times this week to get poked. Everyone says I'm looking really yellow but I still think I'm pretty cute and mommy agrees.  Dad tells me my 2 goofy uncles are coming to see me this weekend. More beers are in store but none for me.

May 15th

I got poked in my foot by those lab coat people again today and they took more red stuff. This time the doctor tells mommy and daddy I have to spend the night tanning. Ohhhh I hate those bright lights. Mom and dad say I look like a little glow worm but I'd rather be in mommy's arms all night. The nurses let me watch tv with them sometimes though so mommy and daddy can have a break. I hope there's something good on tv tonight.

Friday, May 13th

Yay! Mommy and daddy say today is a big day. We get to go home. They say I will love it there and lots of people are looking forward to seeing me. Papa and nan have been looking at me and shinning bright lights at me all week. Papa says he'll put them on the computer but mommy says that might take a while. Dad says it's time I  meet nanny and poppie Vaters. They are coming to see me today too. Poppie Vaters will have lots of beer. Mommy says I won't get to have any of that stuff but daddy says he'll sneak me some when I get older.
The doctor told mommy I'd have to come back to the hospital tomorrow to get poked again...ughhhh how annoying but wooopie I get to go for an extra drive in the car, even though I hate those straps they put me in.

May 11th

I've spent the majority of the last 2 days sleeping and getting poked at by these people with lab coats. They like to talk with mommy about how cute I am but I just want them to hurry up and let my foot go. They collect all this red stuff and say its for tests. Mommy says I'm a good monkey everytime it's over. I don't know what monkeys are but they must be something special if i'm one. I hear lots of talk these days about this bili thing and lights. The nurses and doctor tell me I get to go tanning. This should be interesting.

May 9th

After 30 long hours and a lot of coaching from daddy, nan, and aunt Lisa, I finally made it out to see mommy and daddy for the first time. Everyone was crying and saying how awesome mommy did but personally I think I did all the work. It took me a little while to catch my breath and I was freezing cold but after a while I enjoyed being out of there and of course loving all the attention. Mommy says I'm a ham already and people say they could just eat me but I'm not really sure if I want that to happen.

May 8th

Today at 1:30 in the morning while mommy and daddy were txting back and forth I decided to suprise everyone by coming a few weeks early. Mommy was always talking about me being born before my due date so I figured it was time. Mommy and I also missed daddy a lot so we knew if I was born then he would come home and we were right! As soon as daddy heard the good knews that mommys water broke, and with a little convincing from uncle Christopher that I was definately coming today, he hopped on a plane to fly accross to country to be with mommy for my arrival.